World Down Syndrome Day ~ Orginally posted March 21, 2011
I just opened this email from Manasota BUDS:
3-21-11 marks the 6th anniversary of World Down Syndrome Day and each year the voice of people with Down syndrome, and those who live and work with them, grows louder.
Manasota BUDS encourages members to share stories of their loved ones on the BUDS Facebook page and Google discussion group.
The milestones, accomplishments, and great moments from the past year.
No problem; the timing couldn’t be better. I spent yesterday with the most wonderful, sweet, funny, joyful little girl I know…who also happens to have Down syndrome. The last part I add only to help the voice grow louder. It is certainly not what defines my niece, Ella. To me, her adoring aunt, Down syndrome has become an adjective among many others to describe her. Daring is another one that fits. I’m amazed she rides horses; that’s something I can’t do without a disability. She rides roller coasters with her arms stretched straight to the sky. And she braved choppy waters yesterday in a boat about the size of a garbage can. She was nervous at first…
…but was over it in about 30 seconds!
Not once did she say, “I don’t want to do this,” or “I’m scared,” and trust me, she would have! Another adjective to describe Ella is assertive. She simply doesn’t back down from things – school, riding bikes, or in this case, the boat. Down syndrome will not hamper Ella from achieving in her life. She’s just like anyone else. She has feelings, opinions and goals. I consider myself extremely lucky to be along for the ride.